Living, Sharing

Good Rough Days

“Friendship is born at that moment when one person says to another, ‘What! You too? I thought I was the only one.”

C.S. Lewis
Great friends

Warning: some of the pictures are graphic for sensitive readers

It has been a wild two days since the last update. Last night I went to put Henry in bed with hopes of switching with Amy visiting John Lee at the hospital. I did up Henry to sleep, but I also passed out. I do not remember when Amy came back. That went the update.

It kind of occurred to me how stressed we have been as the days go-by. I have had a headache. A rare occurrence. The day started off with me walking to the hospital to make sure everything was in order before John Lee was taken in for his procedure. At the hospital his nurse game an update of what was expected that morning, the anesthesiologist talked with me about the procedure. He said:

  • It will take 10-20 hours
  • He will be under and comfortable the entirety of it
  • It is common not to close the chest after the procedure
  • He will be very sick after the operation
  • He will not look great
  • He (the anesthesiologist) was from Zimbabwe 

Then we talked about random things that are happening in the Malawi-Zimbabwe region. It is amazing how calming this was—therapy from my African brother.

Soon after they wheeled John Lee off and I went back to Amy and Henry. We would later receive intermittent updates about the procedure over the phone. He was doing well.

That morning my brother from another mother, Cody and his wife, Heidi and daughter, Georgia arrived. We soon were off to downtown Palo Alto. I cannot express enough how instrumental their presence has been. They have ministered to us greatly. Having them around during the period of the surgery helped both Amy and me not think, or worry much about the surgery. 

Cody and his little girl

About 9 hours later we got a call from the hospital. It only said to got the front desk at the hospital, the surgeon would like to speak with us. We left for the hospital right away not knowing what to expect. When we got to the hospital the gentleman at the family center took us to a consultation room where we waited for perhaps 20 minutes. He later came back and apologized that we are supposed to go to John Lee’s ICU room. When we got there the surgeon told us that the procedure went well and they were able to connect the MAPCAS to the conduit with ease. They were also able to close the hole between the chambers. He went back to finish but called us to let us know that they will not be closing his chest up for another few days to let the swelling go down. 

This is great news! All the possible best outcomes have been accomplished. Currently John Lee is lying in with his chest open (covered with a plastic membrane). We can see his heart beating. There are a lot more apparatus to help him get better, but this is expected. We are amazed at the care and expertise around us.

Today we have been updated further that they are more likely to close him up over the weekend. His organs are doing well. We were also expecting him to be under paralytics but he is not as they are observing that he is doing great. He is wearing a hat to that monitors brain activity. They are not concerned for him as he is showing great progress. It is standard for a baby his age.

John Lee resting after surgery

We are thankful. 

Today we spent more time with Cody, Heidi, and Georgia. It has been great to hold baby Georgia and listen to a baby cry. Henry has had awesome time wrestling his uncle Cody…and the cars. We also had not met baby Georgia before yesterday. She was born a week before John Lee. A lot has happened since then. We are glad they brought her up to us.

Henry playing cars with uncle Cody

We are witnesses to amazing events. We were expecting a very long surgery (10-20 hours), it was complete in less than nine. The were expecting the doctors to only fix the pulmonary issue and fix the hole in the chamber at a later date–both issues where fixed.

We still have to take it one day at a time and I cannot get used to seeing my son laying with an open chest. We have hope beyond what we can see now. This has been John Lee’s music since just after birth.

4 Responses to “Good Rough Days”

  1. Gift Chikwakwa

    Monty and Amy, this is awesome news, you two have been awesome. I cannot begin to imagine what you are going through, at the same time, I am amazed at how you are handling everything, to God be all the glory. You have encouraged me personally, this morning I realized that what I thought was a challenge in my life was actually not when I think of what you having to deal with and listen to how you are dealing with it. You continue to remain in my prayers and I too am confident of this testimony called John Lee’s life.

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  2. Tonya Haynes

    John Lee continues to be a fighter and a testimony to the Lords ability, not only to answer our prayers, but to answer them, exceedingly, abundantly more than we ask or think.
    As followers of Christ, we are not immune to the fall and it’s effect on humanity, but we have such Hope and such Power in His name as we face adversity. Thank you for boldly shining that to the world. It doesn’t mean that it’s not hard, scary or that there aren’t tears shed, but there’s also peace and provision and miracles along the way.
    So thankful for Cody, Heidi and baby Georgia being there with you guys!
    Prayers continue for sweet John’s recovery and for you and Amy’s continued peace, strength, health and stamina. Love and kisses to Henry!

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  3. Jeff Conner

    So blessed by your updates. Praising God for the work He is doing in your lives and the mercy He is showing John Lees. Although, we are far away, we are close to you in prayer and love. Blessings to you all.

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  4. Jenniefer

    Will continue to pray for John Lee and the family. The road ahead will be long and hard but your faith will sustain you. Blessings!

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